A Baby has been born with a rare condition Doctors describe as Complete Congenital Arhinia, an extremely rare condition where congenital partial or complete absence of the nose at birth.
Immediately he was born, Eli began breathing through his mouth. Eli’s mother, Brandi McGlathery, said she knew immediately her child was born that something wasn’t right.
Speaking to Al.com, Eli’s Mother said:
“I pulled back and said, ‘Something’s wrong! And the doctor said, ‘No, he’s perfectly fine.’ Then I shouted, ‘He doesn’t have a nose!”
Eli was born with a rare condition known as complete congenital arhinia. The condition affects fewer than 40 other people around the world, according to the University of South Alabama Children’s & Women’s Hospital.
According to what his mother said, Eli will have to grow past puberty before his nasal passageways could be rebuilt surgically.
Until then, she said, she wants to spare him any unnecessary facial surgeries. “We think he’s perfect the way he is,” she said.
“Until the day he wants to have a nose, we don’t want to touch him. We have to take it day by day.”